April 2024 Newsletter: How to Find Doctors and Clinics
Lead article: How to Find Doctors and Clinics
Breaking News
1) Solve Responds to Findings From the NIH Intramural ME/CFS Clinical Study Published in “Nature”
2)’It took the rug right out from under my life’: Milestone ME/CFS study begins to explain disease, but will it lead to treatments?
3) A blood test will diagnose fibromyalgia more reliably
Latest Research
1) Urine Metabolite Analysis to Identify Pathomechanisms of Long COVID: A Pilot Study
2) Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
3) Heterogenous circulating miRNA changes in ME/CFS converge on a unified cluster of target genes: A computational analysis
Advocacy
1) Solve Advocacy Week: April 15 – 19, 2024
2) 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID: April 3 and 4, 2024
Special Feature
Occupational therapist, Amy Mooney, MS, OTR/L, and physical therapist, Clayton Powers, DPT address the importance of screening for PEM and redefine “exercise” in patients with PEM/PESE.
May 2024 Newsletter: May 12th: International ME/CFS and FM Awareness Day
Lead article: MAY 12th: International ME/CFS and FM Awareness Day
Breaking News
1) ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal
2) Inside a push to create an NIH office for post-infection chronic illness
3) Trial By Error: Will MAGENTA’s Null Results Finally End Professor Crawley’s Long ‘Reign of Error’?
Latest Research
1) Identification of CD8 T-cell dysfunction associated with symptoms in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID and treatment with a nebulized antioxidant/anti-pathogen agent in a retrospective case series
2) Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
3) Subcortical and default mode network connectivity is impaired in myalgic encephalomyelitis/chronic fatigue syndrome
Advocacy
1) INIM 2024 Conference: May 10
2) ME/CFS Awareness Day: May 14
Special Feature
Is There a Gut Origin for ME/CFS?
June 2024 Newsletter: WE WANT TO HELP!
Lead article: WE WANT TO HELP!
Breaking News
1) Australians Abandoned by Healthcare, Sentenced to “Living Death”
2) ME/CFS Isn’t Just Misunderstood, It’s Actively Neglected
3) Trial By Error: Guardian Columnist George Monbiot Calls Out the GET/CBT Charlatans and the Fraudulent PACE Trial
Latest Research
1) Imbalanced Brain Neurochemicals in long COVID and ME/CFS: A Preliminary Study using MRI
2) An Unwanted but Long-Known Company: Post-Viral Symptoms in the Context of Past Pandemics in Switzerland (and Beyond)
3) Development of an expert system for the classification of myalgic encephalomyelitis/chronic fatigue syndrome
Advocacy
1) Clinical Trial Platform Studies and Lessons for ME/CFS research: June 6, 2024
2) Drug Repurposing Clinical Trials in People with ME/CFS: June 26, 2024
Special Feature
For years many doctors believed M.E. – the long term neurological condition which causes debilitating pain and fatigue – was “all in the mind” of those who were suffering.
Submitted by Erica Verrillo
The ME Global Chronicle 