General information
The 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID aims to increase visibility, clarify misconceptions, promote understanding and stimulate discussion among healthcare professionals, researchers, policy makers, patients and community representatives about clinical manifestations, their management, therapeutic options and health challenges linked to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Long COVID.
The conference program will include lectures on the state of the art and interactive sessions designed mainly to meet the educational needs of Portuguese healthcare professionals and the capacity of the healthcare system . The dedicated discussion time aims to encourage the sharing of knowledge and reinforce the implementation of recommendations and guiding standards
The conference will take place on the 3rd and 4th of April 2024, in Lisbon, at the facilities of FLAD – Fundação Luso-Americana para o Desenvolvimento. You can participate in person (limited places) or participate online via streaming.
Registration
Participation is FREE , but prior registration is required using the form available on this website.
In-person registration: When registering to participate in person (1 or 2 days), acceptance of registration is not guaranteed. Due to the limited number of seats in the auditorium, your registration will only be finalized when you receive an email confirmation guaranteeing your in-person spot.
Online registration: When registering to participate online, your registration is finalized when you receive a registration confirmation by email. Closer to the event date, you will receive instructions via email on how you can access the conference streaming.
Program
some highlights
Wednesday 3rd April
9:30 Suzan Levine: Brief History of ‘Pandemics’ Related to ME/CFS Punta Gorda Florida and Royal FreeHospital in London. Origin of Current Case Definition
10:00 David Systrom: The Nexus Between ME/CFS and Long Covid: Insights from the NIH RECOVER Initiative and the NIH ME/CFS and Long COVID Commonalities Task Force
10:30 Elisabeth Unger: Public Health Approach to ME/CFS and Post-Acute Infection Syndromes: Experience of the US Centers for Disease Control and Prevention
11:30 Lucinda Bateman: Covid Long haulers, Presentation of Long COVID and Post-Viral Syndromes, Common Comorbidities of Long COVID and the Design of Simple Treatment Plans
12:00 Luis Nacul: Treatment of ME/CFS: Beyond the NICE Guidelines on Diagnosis, and Recommendations from Europe and North America (in Portuguese with English power point slides)
12:30 Eliana Lacerda: A Prospective Cohort from the UK ME/CFS Biobank (UKMEB): Participants with Mild/Moderate or Severe ME/CFS (in Portuguese with English Power point slides)
15:00 Ed Yong: 3 Years of Covering COVID, Long COVID and ME/CFS: What You Need to Know. Lessons learned by Pulitzer Prize winner in Explanatory Journalism
Thursday 4th April
09:00 Linda Tannenbaum: Complex Diseases Require Open and International Collaboration
09:30 David Systrom: Dyspnea in ME/CFS and Long COVID
10:00 Phillip Joseph: Neurovascular Dysregulation in ME/CFS
12:30 Jonas Bergquist: Metabolic Profiling of ME Patients under Mild Exertion during Home-visits
15:00 Maureen Hanson: Circulating Signals of ME/CFS in Response to Exercise
15:30 Carmen Scheibenbogen: Autoimmunity in ME/CFS and Post COVID Syndrome and Treatment Trials
16:30 Wenzhong Xiao: Severely Ill Patient Big Data Study and Comparing ME / CFS with other diseases
All info here (in Portuguese and English)
Table of contents
The ME Global Chronicle 