Until Justice Is Done

Sometimes I get so fed up…of everything about ME.

All those ‘I-know-it-better’ doctors with their arrogant attitude and their ‘nice’ talk.

All those UWV stories where injustice reigns supreme. All the suffering caused by ME with so many people seriously ill but not believed and unsupported.

Sometimes I am so fed up… that we are just being judged. Judged i.In the medical world, in politics, and the insurance world. All those people and institutions who think only they know. They tell us how it is and how it should be and why we feel what we feel and why it shouldn’t be felt. All those awful psychologists and psychiatrists with their GET-talk and their pedantic attitude who persist in their lies even while knowing the truth.

Sometimes I get so fed up… All that looking forward to ‘someday’. All that hoping for ‘someday’. All that waiting for science and research. All that longing for a treatment that will allow broken bodies to live again.

But then I realize that there are people who have been working for decades to bring this terrible disease ME into the limelight. People who for years and years without giving up, have devoted their energy and time to convincing the world that ME is a serious illness.

These are patients, family members, doctors, volunteers. Men and women who continue to fight against the status quo for recognition and justice. They do this despite being laughed at and despised, in spite of being portrayed as charlatans or quacks, and despite the fact that it seems like it doesn’t make a difference.

Then I feel proud to belong to this group. Not wanted, but called to this by life. Proud and strengthened to go on and fight until this terrible disease is recognized worldwide; until justice is done for all ME patients.

Marieke

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